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Received INITIAL PODIATRIC CONSULTATION AND EVALUATION REPORT FROM FOOT SPECIALIST
#11
Thank you so very much for every thing!
Life is like the ocean, it can be calm one minute and the next a wave will knock you off your feet, it's up to you to get back up and take control.
 
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#12
Sunshine7 Wrote:Thank you so very much for every thing!
I live in LA California
Life is like the ocean, it can be calm one minute and the next a wave will knock you off your feet, it's up to you to get back up and take control.
 
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#13
California Pain Medicine Center
100 UCLA Medical Plaza
Suite 760
Los Angeles, CA 90095

Ph: (310) 264-7246
Fax: (310) 882-7005

http://www.californiapainmedicinecenter....ge=profile


Sunshine, if this center is in you MPN you can ask your PTP for a referral for RSD treatment.

You live in the best area in California for treatment. I've only been as far South as Palmdale, but wish I had as many choices as you do. Good luck to you.
Let Go, and Let God......
 
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#14
But suppose it is not RSD ? What is a pain Dr. going to know one way or the other ? They are not clinicians. Physiatrist yet ?


chrischris Wrote:California Pain Medicine Center
100 UCLA Medical Plaza
Suite 760
Los Angeles, CA 90095

Ph: (310) 264-7246
Fax: (310) 882-7005

http://www.californiapainmedicinecenter....ge=profile


Sunshine, if this center is in you MPN you can ask your PTP for a referral for RSD treatment.

You live in the best area in California for treatment. I've only been as far South as Palmdale, but wish I had as many choices as you do. Good luck to you.
 
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#15
chrischris Wrote:California Pain Medicine Center
100 UCLA Medical Plaza
Suite 760
Los Angeles, CA 90095

Ph: (310) 264-7246
Fax: (310) 882-7005

http://www.californiapainmedicinecenter....ge=profile


Sunshine, if this center is in you MPN you can ask your PTP for a referral for RSD treatment.

You live in the best area in California for treatment. I've only been as far South as Palmdale, but wish I had as many choices as you do. Good luck to you.
Thanks I'm going to call them tomarrow.
Life is like the ocean, it can be calm one minute and the next a wave will knock you off your feet, it's up to you to get back up and take control.
 
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#16
Sunshine, not all PEOPLE and not all Doctors understand, or even know what CRPS/RSD is. That is why it is so important to go to a doctor that KNOWS RSD. They will not just start unnecessry procedures on you without testing you first. A pain management/anesthesiologist is a good choice. A Physiatrist is a good choice. A neurologist is also a good choice.

I have been to all three specialties, and none of the doctors I have been to have ever been pill pushers, but the main treatment goal has always been "restoration of function."

You also have to take charge of your medical. If you don't feel comfortable with something, tell the doctor.

RSD does not go away by itself. It is a lifelong condition. You can get it under control and keep it in a mild state if you start treatment early, like within the first 6 months. Very few cases ever go into remission.

Using myself as an example, my hand and upper extremity RSD was 2 years before I was dx'd and started treatment. I went to a Neurologist. All He did was physical therapy and gave me something to help me sleep. I felt I was gaining strength, but it didn't help the RSD.

Second doctor was Spinal Intervention Specialist, another name for Pain Managment Anesthesiologist. He did 3 Stellate Ganglion Blocks, with very short lived pain relief. We decided to stop those and now I'm in the system again waiting for approval to see him to discuss a trial spinal cord stimulator. Note, this dr. would not rx any meds, except for a few vicadin after a block. I never needed the vicadin except on the first day.

Third doctor, whom I am seeing now, is a Physiatrist. The first thing he wanted to do was Lumbar Blocks for my Lower extremity; so we did a series of 3. I have to say that these worked well. It will be my decision if I want to have another block, but I don't feel I need it right now. I also did a series of 3 acupuncture treatments with him; which had little to no effect. No more acupuncture.

My QME is a pain management/anesthesiologist. He's very versed in RSD and I only wish we had more doctors like that here in the Central Valley, but he's in Southern California.

Remember, you can choose the doctor to treat you, but you have to stay within your employer's MPN. You can always ask for a 2nd opinion. You can always change doctors.

Don't accept an online diagnosis. Just because your symptoms are like someone elses, you have to have a doctor diagnose you. Some PEOPLE don't believe in RSD as a condition, but rather as a diagnosis of exclusion. I do agree other conditions have to be excluded before a diagnosis can be made of RSD.

Educate yourself, check on the sites I sent you for information. The pain is not in your head. It is real. You are not crazy. Tongue
Let Go, and Let God......
 
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#17
Chris:
re: "RSD does not go away by itself. It is a lifelong condition. You can get it under control and keep it in a mild state if you start treatment early, like within the first 6 months. Very few cases ever go into remission."

That's not true. Most of the time it does resolve so lets keep her hopes up. Here's a pretty definitive current review of prevalence.

http://www.rsds.org/2/library/article_ar...s_PAIN.pdf
 
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#18
mmmmmm I am quessing you would have a hard time convincing those with RSD that your statement has merit.....Sithie suffers horriably from this crap
........I love cats, I just cant eat a whole one by myself......







 
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#19
Cycler, In your research, you must have read articles or interviewed Dr. Steven Feinberg. He runs a pain clinic in the Bay Area, and was a recent contributor to the ACOEM chapter 6, on pain management, and an expert with the AMA guidelines.

Here is an article he wrote on CRPS/RSD:
http://rds.yahoo.com/_ylt=A0oGkjS6T05LYC...salgia.pdf

I believe, IMHO, that his approach to "functional restoration" is the best modality available to an RSD patient. He is very positive, and gives his patients and followers "hope" to lead a relatively normal life, in spite of RSD. His approach is that the patient must "take charge" of their condition and not sit around having a pity poo party.

I don't think I was misleading in anyway with Sunshine, and I only hope for her the best. I did forget to mention to her, and I thought of it afterwards, that the best treatment for me with RSD was when I took charge by "religiously" doing home therapy. Sometimes it feels like the movie "groundhog day" and you have to start all over again when you wake up, but by moving, doing gentle exercises, desentization, pacing yourself, medication as prescribed, psycho-therapy to help you learn to live with your pain, etc., etc........

Sunshine, if I have given you a doom and gloom feeling about RSD, I apologize. The important thing is for you to get treatment as early as possible, and learn all you can about RSD.

Cycler, have you read the Almarez/Guzman en blanc decision? Dr. Feinberg was the AME on either one or both of those cases. I can't remember for sure.

http://www.dir.ca.gov/wcab/EnBancdecisio...ep2009.pdf

Take Care Tongue
Let Go, and Let God......
 
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#20
Oh, don't confuse my statement with the fact that those whose CRPS does not resolve, and it IS a significant percentage, do not suffer horribly for life. I understand that and that it will invariably spread also.

jayne Wrote:mmmmmm I am quessing you would have a hard time convincing those with RSD that your statement has merit.....Sithie suffers horriably from this crap
 
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