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I have made up my mind
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04-19-2007, 09:54 AM
Post: #1
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I have made up my mind
no more surgery for me....Have had in depth talks with my family PCP he has been my doc for over 15 years....I took him all my records to include xrays, MRIs,disco grams and all the other docs opinions and he spoke to his ortho and spine spec. and all came to the same conclusion....I produce way to much scar tissue.The fusion in my neck now has so much scar tissue I can feel it when I swallow it doesnt help my thyroid is also enlarged.....My PCP is worried a fusion in my lower back would cause more harm than good...and his RX is for christ sake Jayne use a cane....he will continue my care after WC is done as far as the lyrica and pain meds and has already gave me refills for a year on the lyrica.
I have had two previous surgeries a gastric bypass and a hysterectomy (caused by to much scar tissue on female organs)and both caused a lot of scar tissue..... My lawyer says I cant refuse outright but he will work with their lawyer on a buy out saying I want my own docs to handle it.which I do. I wanna be able to walk and the thought of scar tissue stopping that or making it to painful scares me to death. He is sure I will get SSDI so that helps but I am so scared to just stop fighting WC for the help I need. I feel to stop fighting them is letting them win but I must do what is best for me and my family. Any thoughts my friends? ;)Workmans comp is not a road you want to travel alone.You need a good lawyer,a great family and good friends to lean on.If you make it thru without losing everything you have worked for all your life,you have come out ahead of the game.....
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04-19-2007, 11:42 AM
Post: #2
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RE: I have made up my mind
Hell Janye you aer not letting them winn, you are the winner by getting out. You have other ins and if you have to you can use it down the road right? I think you are right, and should just take what you can get a run from wc.
The good news is,"You can get used to anything." The bad news is,"You can get used to anything." :-) Sithie |
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04-19-2007, 01:09 PM
Post: #3
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RE: I have made up my mind
Jayne, I have the exact same problem as you, you can read my signature below and see what happened to me. They may try, but if your Dr. says no more surgery due to scar tissue being excessive and it can cause further problems, there is not much they can do to force you into surgery. I now have a PM Dr., and the i/c tried to get me to have a spinal cord stimulator in. My Dr. said under no circumstance will she allow surgery due to my scar tissue issue, she told them there is a lot more that can be done for me with medication and the surgery would cause more problems than the stimulator can help. They stopped the issue, and they have not brought it up again. Excessive scar tissue is a very serious problem, mine is on my spine at L/5, S/1 and my S/1 nerve root is totally encapsulated with scar tissue. I was told by many surgeons bot Ortho. and Neuro. that when you try to clean up scar tissue, it usually comes back twice as bad. No one will go in and try on me, because if they knick my nerve or severe it I could lose all use of my right leg. I hope this helps you not to worry about them forcing you, and I hope you Have a great Day!!
Failed Back Surgery, Chronic Pain, Totally Disabled. Knowledge is Power, Especially in the World of w/c. Learn as Much as You can about Your States w/c Laws, and don't Fight Battles alone, They Use Attorney's, and so Should You!! |
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04-19-2007, 01:19 PM
Post: #4
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RE: I have made up my mind
Still in Limbo Wrote:Jayne, I have the exact same problem as you, you can read my signature below and see what happened to me. They may try, but if your Dr. says no more surgery due to scar tissue being excessive and it can cause further problems, there is not much they can do to force ....) Would anyone know what are the chances of actually getting scar tissue? is it a common problem or 1 in maybe 100 patients. Having had a 2 level cervical fusion what would be my odds of having it trouble me Thanks and be well Take Care and Be Well Tom |
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04-19-2007, 01:53 PM
(This post was last modified: 04-19-2007 03:20 PM by wcaffrey3.)
Post: #5
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RE: I have made up my mind
Oh my Jayne..you sure wouldn't be letting them win...you would be taking care of you. That is the most important. You still have little ones that want thier Momma to be all that she can be. You and your doctor of 15 years know your history better then anyone else. I hope they settled with you in a honest way. Spring
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04-19-2007, 02:26 PM
Post: #6
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RE: I have made up my mind
You arent letting them win by taking care of you! You know whats best for you and your family. And if your long term dr says no more surgery, then no more. If youve been seeing this dr for 15 yrs, then you obviously trust him with your health care. I wish you the best of luck, and pray that the outcome of all this will be to your satisfaction, so you can put wc behind you and try to move on with your life. Youre a wonderful woman, you deserve nothing but the best!!
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04-19-2007, 02:56 PM
Post: #7
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RE: I have made up my mind
I have scar tissue issues with both my hand surgeries and my ortho doc told me some people just ave more issues with it than others. As far as how common it is,I think everybody gets sar tissue when healing but it varies and depends on each inividual person if it becomes a problem at the surgical area....
The scar tissue on my writs are so bad it is now putting pressure on nerves and I m becoming sympomatic for CTS in one hand...but I have not been using it! Between that and the nerve damage, using hands is interesting at times! Just gotta deal with it. So I do ot think you are making the wrong decision based on your history and desire to continue to walk. I certainly could see adhesions creating more issues with surgery....but my opinon only. All good things! |
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04-19-2007, 02:57 PM
Post: #8
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RE: I have made up my mind
Is the problem with producing too much scar tissue genetic?
My sister has had major problems with this. I learned this week that I need hand surgery, one of the complications of this surgery is scar tissue forming around the nerve. And according to the dr at the spine institute, I also need back surgery, again the concern of scar tissue. |
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04-19-2007, 05:51 PM
Post: #9
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RE: I have made up my mind
Jayne they aren't winning. A Doctor's documents of the issue of excessive scare tissue build up, and why surgery would should left out for now, is the issue. Your not refusing surgery, if scare tissue build up, is causing you to only become worse. Sounds like you have a good Doctor in your corner, and I don't see any reason for you to be scared or worry. You always have to do what is in your best interset. In fact, one major issue in all WC issues, are, and it states, that if you, or any Doctor think some sort of treatment would only cause you harm, or more harm, then you have the right to say you don't wish it then done. Like I always say, get documents to support you. Reply's are intended solely for informational purposes. They are based on personal opinions, experience, or research and are "not to be taken as fact or legal advice", otherwise, always consult an attorney or a doctor. |
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04-19-2007, 08:39 PM
Post: #10
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RE: I have made up my mind
Hi Jayne...several years ago, my husband had a motorcycle accident and he walked away with 4 heriated disc in his lumbar region. At the time, medical field recommended surgery and it would have been paid by our auto insurance, but he said no thank you. To this date he lives with the pain in his lower back but if you asked him, he believes it was better than going through a surgery that may be botched. I am not sure about the scare tissure formulation after a surgery. I know that the risks are related to your age, health such as if you have diabetes, CHF, and activity tolerance etc. Now, however, he has the 3 herniated disc in his cervical (neck) from a work injury and he still says that when IC offers to pay for this he is not going to have it. I think it is a question that only you and your doctor can answer and it sounds like you have. It is your body, not the IC. You still have some rights and I believe making decisions about your treatments is one of them. I am learning with W/C IC the rules of self rights do change some, don't understand why but they do. However you are a fighter, I see it in all your post. Do what you think is best and let the lawyer fight to win the other. Best of luck. My heart and prayers are with you.
Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind. |
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