rsd and cellulitus

[fireball]

fireball Wrote:

katicabogar Wrote:Undercover Angel,

Thanks for the info, I will check them out.

Fireball,

I had surgeries on both hands for carpal tunnel/tendonytis and thumb triggering.
I have constant burning in my shoulders and my fingers are so stiff, I need to use the other hand to straighten them. Hard to turn neck, it is stiff all the time. Hard to raise arms above shoulders. Depression. Can't stand noise or touching. One hand cold, other warm. Color on one hand pink, other one bluis. Nails a few years ago got thick and fell off. Now they barely grow. Burning also started on the heels of my feet. Big toes curl up and get stiff. Nails are thick. Have numbness and tingling in hands/neck/feet.
These are some of the symptoms, I don't know if they have anything to do with rsd or not. Some doctors told me, I may have arthritis.
Thanks.
Kat

undercover angel, rsd is so complex and it can mimic other diseases so alot of doctors are scared to diagnosis especially if they are treating you after a procedure they have done on you. the number one thing associated with rsd is burning pain--although yes as i saw the other reply diabetics often have it but it is usualy contained to the lower lkimbs. i am curious as if after the surgery if the burining started in your habnd and then moved up to your shoulder. how rsdspreads is from hand to hand or from hand down to the leg on that side and then across to the other. nosies are extremely bothersome --it is like an electric jolt goes throgh my body. im not an expert on arthritis but the symponts sound more like rsd--the burning -tingling -nail growth and discoloration of hands. what i would suggest as rsd is usually different each day is take photos--ie on the days of the discoloration, document the growth or non growth of nails. what happens is so many people do not have the outward no 1 symptom -discoloration when they seee their doctor and some doctors plain will not believe their complaints of burniing pain without seeing this symptom. those on workmans comp deffinentlt need to take daily photos--it is their bwest defense with the w/c systym
if you truly have rsd and are treated a t a pain clinic they will give you a varierity of med to make your life as comfortable as can be. although having full body i need to take masive amount of meds i am hoping that with this spinal cord stimulator i can get off a lot of them as they are affecting my inner organs. im the kind of person that wont give up and i realy hope one day i can return to work. in the meantime i enjoy being able to help answer peoples questions as when i first was diagnosid there wasnrt anywhere to turn to. i guess god wanted me off work so i could help others at this time.
take care and try and have as good as day as possible
cheers!!!!!!!!!!!

me!!!!!!!!!!!!!!!!!!!!!!!!

sorry, that message was for kat but hope your having a good day to angel!!!!!!!!!!!!!!!

[UndercovrAngel]

Fireball,

No problem. I knew right away that you meant to address Kat and not me. Although, I am diabetic as well as having RSD. Originally it was thought that my pain was caused by diabetic nueropathy until an EMG/NCS proved otherwise.

And yes, you are correct in the fact that many Dr's that actually do the procedures that eventually lead to an RSD diagnosis are wary of making said diagnosis themselves. That is exactly what happened in my case..ortho couldn't/wouldn't help anymore and passed me to pain management, but stated in his referral that he thought it might be RSD and that if caught soon enough, could be cured. As if !! I am glad that he passed me off as within a month I had the right diagnosis and started getting treatment for RSD. However, it took a while to get my meds right..and my first LSB didn't take. It wasn't till several months later when my RSD had progressed into my left leg that we tried the LSB again and it worked.

I was eventually taken off of work in August of '08 for a work injury (non-RSD related) and lost my job on October 4th and my insurance on 30 October. It took several months to be placed on short term disability even though I applied in August as WC denied my case. When I finally got approved and got my insurance back and was able to go for another LSB, it had been 2 months exactly between them and unfortunately, the last LSB didn't take. So now I am a candidate for an SCS.

I talked to my PM Dr Wednesday about it, and while he was examining me, he gave me the news that the RSD has moved up into my lower lumbar area now. I see a psychologist on the 22nd of this month, and if he agrees with me being a candidate, we then go to my insurance for approval. I am anxious to see how this plays out..although I am not altogether sure that I want to get the SCS. I am going to wait to decide till I see what insurance has to say.

I belong to an RSD forum as well as the Wc forum, and I hear many RSD patients say how they would love to see others walk in their shoes for even just a few hours so they would understand how those of us with it feel everyday. I am of the mindset that I wouldn't even want my worst enemy to have to go through this. I pray every day, as RSD becomes better known that some day it will be understood and that something will be found for those of us that suffer daily. If not a cure, something that will allow us to go back to the way our lives were before we became affected by such a nasty disease.

Hope you have a good weekend. I am going back to bed as I am at a pain level of 9 after having to do to much this week. I just wanted to check in and see what was happening on the forum.

Angel ^j^

[fireball]

UndercovrAngel Wrote:Fireball,

No problem. I knew right away that you meant to address Kat and not me. Although, I am diabetic as well as having RSD. Originally it was thought that my pain was caused by diabetic nueropathy until an EMG/NCS proved otherwise.

And yes, you are correct in the fact that many Dr's that actually do the procedures that eventually lead to an RSD diagnosis are wary of making said diagnosis themselves. That is exactly what happened in my case..ortho couldn't/wouldn't help anymore and passed me to pain management, but stated in his referral that he thought it might be RSD and that if caught soon enough, could be cured. As if !! I am glad that he passed me off as within a month I had the right diagnosis and started getting treatment for RSD. However, it took a while to get my meds right..and my first LSB didn't take. It wasn't till several months later when my RSD had progressed into my left leg that we tried the LSB again and it worked.

I was eventually taken off of work in August of '08 for a work injury (non-RSD related) and lost my job on October 4th and my insurance on 30 October. It took several months to be placed on short term disability even though I applied in August as WC denied my case. When I finally got approved and got my insurance back and was able to go for another LSB, it had been 2 months exactly between them and unfortunately, the last LSB didn't take. So now I am a candidate for an SCS.

I talked to my PM Dr Wednesday about it, and while he was examining me, he gave me the news that the RSD has moved up into my lower lumbar area now. I see a psychologist on the 22nd of this month, and if he agrees with me being a candidate, we then go to my insurance for approval. I am anxious to see how this plays out..although I am not altogether sure that I want to get the SCS. I am going to wait to decide till I see what insurance has to say.

I belong to an RSD forum as well as the Wc forum, and I hear many RSD patients say how they would love to see others walk in their shoes for even just a few hours so they would understand how those of us with it feel everyday. I am of the mindset that I wouldn't even want my worst enemy to have to go through this. I pray every day, as RSD becomes better known that some day it will be understood and that something will be found for those of us that suffer daily. If not a cure, something that will allow us to go back to the way our lives were before we became affected by such a nasty disease.

Hope you have a good weekend. I am going back to bed as I am at a pain level of 9 after having to do to much this week. I just wanted to check in and see what was happening on the forum.

Angel ^j^

angel, i was sooo leary about the spc and yes i was suppose to take the psychologist test but i never did. after the trial a date came open so quick that the doc-surgeonand the rep of the stimularor could all be there they went ahead and did it. it rally is making a difference in my life and my sole reason for it was to be taken off some of the 34 pills i take a day. the only down part is sometimes i get irrated with the hum drum of the machine inside--but being able to control the level it is at and turn it off if i want is a plus. of couse it doesnt take away the loss of circulation swelling etc, but mentaly i feel alot better dealing with it. and the reps from the company are at your beck and call for any questions are if you want new programs. dealing with pain really is a mental challenge and many times it is easier just to sit then do anything. i went with my husband to the mall tonite(of course in a wheelchair) he's ashopper. before i would be so consumed by pain i couldnt enjoy shopping--i would go into the store-get what i want asnd get out. it really was special tonite to be able to go there and pick out things i wanted and not having people just bring me home things they thought i would like. my psychologist told me that test can take up to 2 hrs and it is basicaly the same questions being asked in different ways. i really hope the test goes well and your insurance pays for it. your really lucky to be able to keep your ins. my co no matter what after being off co payroll for one year you go on cobra or get your own. being that i was eligble for social security i found ins for my hus and children alot cheaper than cobra although not as good as i had at work. as long as i make it back to my co within 5 years they have to take me back--maybe not flying but some other position where once again i will get all my benefits back--big problem is that i live almost 3 hrs from my work. but ive learned to put all of this in gods hands--he knows the outcome and i have no control--and i to would never wish this upon any of my worst enemies. well im sooo excited about all the bath and body stuff we bought and cant wait to go through it all(we walked out with two large shopping bags)--maybe theres a reason i should stay out of the mall. hope you sleep as well as you can

cheers!!!!!!!!!!!!

me!!!!!!!!!!!!!!!!

[fireball]

dsny1mom Wrote:Fireball

I just noticed on another thread that your WC case is in Wi. I just assumed it was in Illinois as that is where you live. So ignore what I said about calculating your settlement, as what I posted was for Illinois not Wi.

dsny1mom

Dsny1mom just reading through old post if you are still on i wanted to let you know i am from il. and if you are too i will let youknow how the calculating is done hope you r doing well

fireball