10-03-2009, 02:00 PM
Hello To My extended Family,
Sorry it took me a couple days to give this report from my Neuro visit on Thursday but yesterday I was so sick.
This has been a horrible week for me with pain and starting this dibetes med as I have been having these horrible spells since I started taking this Glucophage. It is prescribed 2 times daily and I take it in the morning and bedtime. If any nurses or diabetics can offer any suggestion it would be appreciated. It seems like when I wake up I am in the sweats and feel weak. I get up and try to have my coffee but take a couple sips and I start feeling so bad I have to head for the bed. The sweat just pours off of my entire body. I go back to bed and fall asleep. I am use to getting out of bed around 5:15 but yesterday I went back to bed a few minutes after I got up. I slept until 11am and when I woke up I was still haveing these awful sweats and still feeling bad. I tried to eat something and drank something and tried to stay up. I did manage this but I also did not take the Glucophage yesterday morning and I did not take it last night. I feel like what is happening is during the night my blood sugar must be dropping and upon awakening I am in a probably low blood sugar spell. This happened to me 3 times this past week. I did not start feeling somewhat normal until around 3pm yesterday afternoon. Last night I did not take the med either. I did take it this morning and so far I am doing ok. I do not plan on taking it at bedtime as I want to see how I am feeling tomorrow morning without having taken it. Maybe 2 doses a day might be more than I need. I just don't know as I am checking my sugars and trying to figure this out.
I am still just bidding the time until I see the kidney doctor again in a few weeks and have blood work done again to see if I will need the kidney biopsy to check for Amodolydosis. I am also just bidding time for the next few weeks until we get the results of Kyzer's repeated PKU test. He also had to have his hearing rechecked because he failed the test at the hospital in his right ear. Beau and Kailey had the test done a few days ago and everything is okay......thank God. I was suppose to babysit him yesterday afternoon for my son to so play golf but I could not do it because I was feeling so bad. Ask me if I was sad? Yes, I was cause I wanted to be with him and hold him and love up on him....well I cried yesterday.
OK, I saw the neuro and brought the myelogram which he had not seen, only the 2nd opinion neuro has seen it because he orderded it. The 2nd opinion neuro states that this herniation is not from my injury. OK, so now what. My regular neuro I saw Thursday states that from the time I had the MRI done on Dec. 18, 2008 from the time I had the myelogram done on May 26, 2009 I have alot more that is going on than what the MRI showed. Since Jan. my neuro has been wanting to do my surgery and WC had not approved it but played around with it until they sent me for a 2nd opinion in May. So the question is, If the surgery would have been approved would all this other stuff going have occurred. I now have herniations on both sides instead of just on the left. I also have spinal stenosis and alot of arthritis going on. He stated that this surgery will entail alot more than the others I had because I have so much going on. Before he tried to schedule surgery he is sending me back to the neurologist for another EMG/NCV to check and see if there are any changes involving the nerves and nerve damage. Right now I am scheduled for that visit on Nov. 4th but will go earlier if they have a cancellation. My appt. to see my neuro. surgeon is for Nov.5 unless the neurologists is able to see me earlier then I will see my surgeon earlier. My surgeon also told me that I have to get off the Oxycontin before he will do this surgery. He states that patients that are on this med he finds does not do as well after surgery. As of Thursday I have started weening myself off the Oxycontin. He is sending a note to my PM doc to get him to prescribe something for me that is non narcotic. He is also dictating a letter to WC to let them know that he feels that alot of what is going is is due to my injury. I sent my lawyer a note about all this but have not heard back from her yet. I am just ready to have my Medicare pay if they don't approve so I can get this behind me. I am so tired of being in this condition and have to try and find some type of relief.
That is about it for now. I will keep you posted when I hear something else. Again, sorry for the delay but when you are too sick to do something you are just too sick. I know everyone understands what that situation is like because we all live it everyday. My prayers are with all of you that you are all doing well and making good progress with whatever situations you may be dealing with at this moment. My love to each and everyone of you. I love all of you dearly.
Cajun Hugssssssssssssss,
MJC
Sorry it took me a couple days to give this report from my Neuro visit on Thursday but yesterday I was so sick.
This has been a horrible week for me with pain and starting this dibetes med as I have been having these horrible spells since I started taking this Glucophage. It is prescribed 2 times daily and I take it in the morning and bedtime. If any nurses or diabetics can offer any suggestion it would be appreciated. It seems like when I wake up I am in the sweats and feel weak. I get up and try to have my coffee but take a couple sips and I start feeling so bad I have to head for the bed. The sweat just pours off of my entire body. I go back to bed and fall asleep. I am use to getting out of bed around 5:15 but yesterday I went back to bed a few minutes after I got up. I slept until 11am and when I woke up I was still haveing these awful sweats and still feeling bad. I tried to eat something and drank something and tried to stay up. I did manage this but I also did not take the Glucophage yesterday morning and I did not take it last night. I feel like what is happening is during the night my blood sugar must be dropping and upon awakening I am in a probably low blood sugar spell. This happened to me 3 times this past week. I did not start feeling somewhat normal until around 3pm yesterday afternoon. Last night I did not take the med either. I did take it this morning and so far I am doing ok. I do not plan on taking it at bedtime as I want to see how I am feeling tomorrow morning without having taken it. Maybe 2 doses a day might be more than I need. I just don't know as I am checking my sugars and trying to figure this out.
I am still just bidding the time until I see the kidney doctor again in a few weeks and have blood work done again to see if I will need the kidney biopsy to check for Amodolydosis. I am also just bidding time for the next few weeks until we get the results of Kyzer's repeated PKU test. He also had to have his hearing rechecked because he failed the test at the hospital in his right ear. Beau and Kailey had the test done a few days ago and everything is okay......thank God. I was suppose to babysit him yesterday afternoon for my son to so play golf but I could not do it because I was feeling so bad. Ask me if I was sad? Yes, I was cause I wanted to be with him and hold him and love up on him....well I cried yesterday.
OK, I saw the neuro and brought the myelogram which he had not seen, only the 2nd opinion neuro has seen it because he orderded it. The 2nd opinion neuro states that this herniation is not from my injury. OK, so now what. My regular neuro I saw Thursday states that from the time I had the MRI done on Dec. 18, 2008 from the time I had the myelogram done on May 26, 2009 I have alot more that is going on than what the MRI showed. Since Jan. my neuro has been wanting to do my surgery and WC had not approved it but played around with it until they sent me for a 2nd opinion in May. So the question is, If the surgery would have been approved would all this other stuff going have occurred. I now have herniations on both sides instead of just on the left. I also have spinal stenosis and alot of arthritis going on. He stated that this surgery will entail alot more than the others I had because I have so much going on. Before he tried to schedule surgery he is sending me back to the neurologist for another EMG/NCV to check and see if there are any changes involving the nerves and nerve damage. Right now I am scheduled for that visit on Nov. 4th but will go earlier if they have a cancellation. My appt. to see my neuro. surgeon is for Nov.5 unless the neurologists is able to see me earlier then I will see my surgeon earlier. My surgeon also told me that I have to get off the Oxycontin before he will do this surgery. He states that patients that are on this med he finds does not do as well after surgery. As of Thursday I have started weening myself off the Oxycontin. He is sending a note to my PM doc to get him to prescribe something for me that is non narcotic. He is also dictating a letter to WC to let them know that he feels that alot of what is going is is due to my injury. I sent my lawyer a note about all this but have not heard back from her yet. I am just ready to have my Medicare pay if they don't approve so I can get this behind me. I am so tired of being in this condition and have to try and find some type of relief.
That is about it for now. I will keep you posted when I hear something else. Again, sorry for the delay but when you are too sick to do something you are just too sick. I know everyone understands what that situation is like because we all live it everyday. My prayers are with all of you that you are all doing well and making good progress with whatever situations you may be dealing with at this moment. My love to each and everyone of you. I love all of you dearly.
Cajun Hugssssssssssssss,
MJC
